Celebrating 30 years of Fabry Australia with ‘30 Fabry Stories, from the Australian Fabry Community.’ Tanya Tindall is carer to husband Brad, diagnosed with Fabry in 2016. Her daughter Chloe, now 18, also inherited Fabry “You have to advocate for your own health...
Celebrating 30 years of Fabry Australia with ‘30 Fabry Stories, from the Australian Fabry Community.’ Associate Professor Carolyn Ellaway is a Clinical Geneticist in Metabolic Genetics at the Children’s Hospital Westmead in Sydney. She treats the majority of children...
Celebrating 30 years of Fabry Australia with ‘30 Fabry Stories, from the Australian Fabry Community.’ Alec Campbell is a Year 6 school student in rural Victoria. He was diagnosed with Fabry disease at birth. “I talk to my mum about Fabry, about what causes it. She...
Celebrating 30 years of Fabry Australia with ‘30 Fabry Stories, from the Australian Fabry Community.’ Leanne Clark is a lifelong carer to her husband Ross and daughter, Ashleigh, both living with the rare disease, Fabry. “Sometimes you just want to feel life is normal...
Celebrating 30 years of Fabry Australia with ‘30 Fabry Stories, from the Australian Fabry Community.’ Julie Fitzgerald lives on the Mornington Peninsula in Victoria. She was diagnosed with Fabry disease at age eight. Julie is the author of ‘Faber the Dragon’, a...
Celebrating 30 years of Fabry Australia with ‘30 Fabry Stories, from the Australian Fabry Community.’ Dianne Wallyn was diagnosed with Fabry in 2009. She volunteers her time to supporting Fabry Australia as a committee member. “It helped me take the fear out of having...
