The recent Expert Summit and Patient Conference brought together patients, carers, and medical professionals in a spirit of unity and support. Speakers gathered in Melbourne to share insights on lysosomal diseases with a focus on genomics, rare disease diagnosis, and...
The story behind the evolution of our educational children’s story. Faber the Dragon is a children’s story about a small child who has a messy dragon living inside of him. Julie Fitzgerald, a fellow Fabry patient, penned the book for her young niece to help explain...
What is Gene Therapy and are you eligible to apply for upcoming clinical trials? Fabry Australia and the Fabry Australia Medical Advisory Committee invited members to join them for an online meeting on 14th September 2022 to discuss upcoming gene therapy clinical...
Latest News We are very excited to announce the new date for the Fabry Australia Wellness Retreat is Friday 24-March to Sunday 26-March 2023. The event will us to gather for some well-earned relaxation and rest. It will be an opportunity for you to meet others living...
UPDATED 25-August 2022 The Chair Report from the Fabry Australia 2022 AGM can be viewed by clicking here. ORIGINAL POST This notice is to advise you of the upcoming 2022 Annual General Meeting of the members of Fabry Australia. Please note, this meeting is only open...
