Latest News We are very excited to announce the new date for the Fabry Australia Wellness Retreat is Friday 24-March to Sunday 26-March 2023. The event will us to gather for some well-earned relaxation and rest. It will be an opportunity for you to meet others living...
UPDATED 25-August 2022 The Chair Report from the Fabry Australia 2022 AGM can be viewed by clicking here. ORIGINAL POST This notice is to advise you of the upcoming 2022 Annual General Meeting of the members of Fabry Australia. Please note, this meeting is only open...
An evidence-driven proposal for a change in the treatment paradigm for Fabry disease to ensure timely and equitable access to treatment after confirmatory diagnosis. In Australia access to available treatments is managed via the Life Saving Drug Program (LSDP)...
Sanofi Genzyme provide a program for health professionals called the ‘Fabry Academy’ and incorporate patient stories. In this video Caitlin Emmerich bravely shares her story. Share your Fabry Story with us via email to...
Kaye recently shared her story about being diagnosed with Fabry disease. What led to your Fabry disease diagnosis? I had thickening of my heart wall and my medical team wanted to see if it was hereditary, so l went to the genetics clinic for testing. Some blood tests...
