Celebrating 30 years of Fabry Australia with ‘30 Fabry Stories, from the Australian Fabry Community.’ Jason Williams, 49, is an IT manager who lives on Queensland’s Gold Coast. He was diagnosed with Fabry in 2017 after a routine check-up with his GP. “I’m always...
Celebrating 30 years of Fabry Australia with ‘30 Fabry Stories, from the Australian Fabry Community.’ Mark de Wolf, 53, runs a gardening business and works as a bush regenerator (nature conservation). He was diagnosed with rare disease, Fabry, in 1984. “I know we are...
Celebrating 30 years of Fabry Australia with ‘30 Fabry Stories, from the Australian Fabry Community.’ Tanya Tindall is carer to husband Brad, diagnosed with Fabry in 2016. Her daughter Chloe, now 18, also inherited Fabry “You have to advocate for your own health...
Celebrating 30 years of Fabry Australia with ‘30 Fabry Stories, from the Australian Fabry Community.’ Associate Professor Carolyn Ellaway is a Clinical Geneticist in Metabolic Genetics at the Children’s Hospital Westmead in Sydney. She treats the majority of children...
Celebrating 30 years of Fabry Australia with ‘30 Fabry Stories, from the Australian Fabry Community.’ Alec Campbell is a Year 6 school student in rural Victoria. He was diagnosed with Fabry disease at birth. “I talk to my mum about Fabry, about what causes it. She...
