Raising awareness, finding solutions, walking the Fabry journey together.
Uniting the Australian Fabry community, by working together to improve the lives of those affected by Fabry Disease.
Promote patient advocacy
Fabry Australia advocates at a national level to the government to further understand Fabry patient needs.
Share information, knowledge and resources
Fabry Australia members will receive the latest up to date information on Fabry research. We encourage members to share personal experience to broaden Fabry knowledge within the Australian community.
Raise awareness and understanding of Fabry within the community
Fabry Disease being a rare disease, knowledge is important in raising awareness is imperative. All Fabry Australia members are invited to Fabry educational seminars and conferences.
I started on my Fabry story, when at the age of 10 while suffering a high fever I was put into Hospital quarantine.
This year’s Fabry patient face to face meeting will take on a different format. There will be the chance to meet new Fabry friends and catch up with old friends in a more holistic setting. Think – yoga, bushwalks, mindfulness, healthy cooking/eating class