08-Sep-2012

Amicus-Updated Patient Screening Profiles From Phase 3 Fabry

Attached is the Press Release that Amicus has issued yesterday about the “Patient Screening Profiles from Phase 3 Fabry Study”. Screening profiles results have in fact, been presented this week in a poster at the Society for the Study of Inborn Errors of Metabolism (SSIEM) Annual Symposium 2012.

28-Aug-2012

Amicus 012 Study - 28th August, 2012

FSGA has been notified that the Amicus 012 study is closing recruitment in 3 weeks.

27-Jun-2012

Changes to Treatment Guidelines- changed in August, 2011

The Guidelines for the treatment of Fabry Disease, through the LSDP were changed

27-Jun-2012

New Zealand Fabry Families-- WE WANT YOU!!

If you or any members of your family are Kiwis with Fabry disease we'd love to know who you are.

This section of the website contains published articles from the following sources:

• Newspapers 
• Magazines
• Research Papers
• Videos
• Television

There are some great you tube sites suitable for educating young Fabry patients.

Watch the recent Fabry disease episode of House on FOX TV../.

Fabry Australia gratefully acknowledges the generous support of the following organisations that are helping to make a difference to people and families affected by Fabry disease.