Raising awareness, finding solutions, walking the Fabry journey together.
Uniting the Australian Fabry community, by working together to improve the lives of those affected by Fabry Disease.
Promote patient advocacy
Fabry Australia advocates at a national level to the government to further understand Fabry patient needs.
Share information, knowledge and resources
Fabry Australia members will receive the latest up to date information on Fabry research. We encourage members to share personal experience to broaden Fabry knowledge within the Australian community.
Raise awareness and understanding of Fabry within the community
Fabry Disease being a rare disease, knowledge is important in raising awareness is imperative. All Fabry Australia members are invited to Fabry educational seminars and conferences.
I started on my Fabry story, when at the age of 10 while suffering a high fever I was put into Hospital quarantine.
Fabry Australia continues to advocate for PBAC approval of the drug Galafold™ (migalastat) the first oral therapy specifically for Fabry Disease.