Attached is the Press Release that Amicus has issued yesterday about the “Patient Screening Profiles from Phase 3 Fabry Study”. Screening profiles results have in fact, been presented this week in a poster at the Society for the Study of Inborn Errors of Metabolism (SSIEM) Annual Symposium 2012.
FSGA has been notified that the Amicus 012 study is closing recruitment in 3 weeks.
The Guidelines for the treatment of Fabry Disease, through the LSDP were changed
If you or any members of your family are Kiwis with Fabry disease we'd love to know who you are.
This section of the website contains published articles from the following sources:
There are some great you tube sites suitable for educating young Fabry patients.
Watch the recent Fabry disease episode of House on FOX TV../.