Fabry Australia 'Understanding Fabry Disease' Factsheet
Understanding Fabry Disease factsheet booklet was produced by Fabry Australia and reviewed by Fabry Australia's Medical Advisory Committee. It is an excellent resource for explaining Fabry disease to a new diagnosed patient and their family and or friends. It is a helpful resource to show health professionals unfamiliar with Fabry Disease.
Fabry Emergency Card
Fabry Australia has developed the Fabry Emergency Card for Fabry patients, carers and family members to keep on hand in their wallet or handbag. Fabry disease is a rare inherited condition which many doctors have not heard of. The card is particularly useful in an emergency whereby the health professionals do not know anything about Fabry disease. The card has details of the disease; clinical symptoms, organ involvement as well as the international Medical Emergency Symbol and OMIM code for Fabry disease.
Fabry Australia Annual Report
Fabry Australia is required to hold an Annual General Meeting (AGM) with its members each year. To read the Annual Report from 2016-2017 financial year PRESS HERE
Resources & Links
Fabry Australia is a member of the following Genetic and Rare Disease Organisations;
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GSNV (Genetic Support Network of Victoria) - Victoria
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GaRDN (Genetic and Rare Disease Network) - Western Australia
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Genetic Alliance Australia - New South Wales
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Rare Voices Australia (RVA) - National based in Victoria
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Fabry International Network (FIN) There are many other Fabry Patient Organisations listed as member Patient Groups on FIN.
