Fabry Australia NSW Fabry Patient Meeting 'Back to the basics and looking forward’
Venue: Garvan Institute, 384 Victoria St, Darlinghurst NSW 2010
Date: Sunday 26th August 2018
Time: 11am – 2pm
Includes: Presentations from Fabry Clinics (Adult and Paediatric), Fabry Australia. Refreshments and light lunch will be provided.
RSVP: 29th July Please email Fabry Australia at email@example.com
Cost: Free to members, $75 for non-members.
Parking: Limited metered parking is available along Victoria St and the surrounding streets with 1 to 2 hour time limits. Parking is also available at St Vincent’s Public Hospital and St Vincent’s Clinic. https://www.garvan.org.au/contact/parking
Fabry Australia invites you to attend the NSW Fabry Patient Meeting. The meeting is targeted at people living with Fabry disease residing in NSW, their carers and interested family. Fabry Australia have invited speakers; Dr Michel Tchan (NSW Fabry Adult Clinic) and Dr Carolyn Ellaway (NSW Fabry Paediatric Clinic) to talk to Fabry disease, Genetics 101 and Fabry disease, Management and care of Fabry disease as well as current and new treatments for Fabry disease. The informal meeting will include a light lunch.
To register your attendance, please email firstname.lastname@example.org
Sponsors of Fabry Australia NSW Fabry Patient Meeting
Fabry Australia declares it has received small educational grants from the following pharmaceutical companies to support this event.
Avrobio, Amicus Therapeutics, Sanofi Genzyme and Shire Australia