NSW Fabry Patient Meeting 26th August

Updated: Jul 26, 2018

Fabry Australia NSW Fabry Patient Meeting 'Back to the basics and looking forward’

Venue:        Garvan Institute, 384 Victoria St, Darlinghurst NSW 2010

Date:           Sunday 26th August 2018

Time:           11am – 2pm

Includes:     Presentations from Fabry Clinics (Adult and Paediatric), Fabry Australia.     Refreshments and light lunch will be provided.

RSVP:           29th July  Please email Fabry Australia at secretary@fabry.com.au

Cost:             Free to members, $75 for non-members.

Parking:        Limited metered parking is available along Victoria St and the surrounding streets with 1 to 2 hour time limits.  Parking is also available at St Vincent’s Public Hospital and St Vincent’s Clinic. https://www.garvan.org.au/contact/parking

Fabry Australia invites you to attend the NSW Fabry Patient Meeting. The meeting is targeted at people living with Fabry disease residing in NSW, their carers and interested family. Fabry Australia have invited speakers; Dr Michel Tchan (NSW Fabry Adult Clinic) and Dr Carolyn Ellaway (NSW Fabry Paediatric Clinic) to talk to Fabry disease, Genetics 101 and Fabry disease, Management and care of Fabry disease as well as current and new treatments for Fabry disease. The informal meeting will include a light lunch.

To register your attendance, please email secretary@fabry.com.au

Sponsors of Fabry Australia NSW Fabry Patient Meeting

Fabry Australia declares it has received small educational grants from the following pharmaceutical companies to support this event.

Avrobio, Amicus Therapeutics, Sanofi Genzyme and Shire Australia


Recent Posts

See All