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Fabry Australia Services

Fabry Australia operates as an Association Incorporated Patient Organisation. It has two part time staff; Managing Director and Administrative Officer undertaking the day to day business of Fabry Australia. A management Committee are responsible for Fabry Australia's strategy, governance and finances. The Committee members are unpaid volunteers and all have a personal connection with Fabry Disease.

Fabry Australia undertakes many activities and services to further support its membership. Some of which include;

  • The Fabry Australia website
  • The Fabry Australia Social Media
  • Fabry Australia Fabry Patient Meeting
  • Fabry Australia Newsletter (E News) 
  • Liaising with Pharmaceutical Industry
  • Fabry Australia Scientific Medical Advisory Committee
  • Fabry Disease Advocacy