Fabry Australia's Activities 
         Fabry Australia undertakes many activities, projects and programs to further support its membership.

Some of which include;

  • The Fabry Australia website

  • Social Media sites - Facebook, Instagram, YouTube and Fabry Australia Discussion Group which is under 'Secret' setting respecting privacy of those individuals posting about medical and personal Fabry experiences. Social media enables us to interact and communicate with members in a way that traditional websites cannot. We use social media as a means of remaining transparent providing timely information to our members.

  • Fabry Australia Fabry Patient Meeting - see Events for upcoming meetings throughout Australia

  • Fabry Australia National Fabry Patient Conference - biannual 2 day conference

  • Fabry Australia Newsletter (E News)  - sign up via the website link or email Fabry Australia directly.

  • Liaising with Pharmaceutical Industry 

  • Fabry Australia Medical Advisory Committee 

  • Fabry disease Advocacy

  • Fabry Australia Wellness Retreat

  • Fabry disease invited speaker meetings

  • Morning coffee meetings with individuals that are newly diagnosed with Fabry disease 

  • Fabry disease research 

  • Fabry Australia 'FUNdraising' activities

  • Fabry Awareness Month - April