+61 (0)412 462 732

Fabry Australia Inc.  |  ABN 70 053 079 595  | Registered Number A0029817E
Terms & Conditions

      Fabry Australia's Activities 

Fabry Australia operates as an Association Incorporated Patient Organisation and is membership based. It has a part time Managing Director who works remotely undertaking the day to day business of Fabry Australia with the support of the Executive Committee who meet monthly by teleconference.

A Management Committee is responsible for Fabry Australia's strategy, governance and finances.

The Committee members are unpaid volunteers and many have a personal connection with Fabry disease. Fabry Australia also has a Medical Advisory Committee made up of the Fabry Medical Doctors of the Australian Fabry Clinics (adults and paediatric) who support Fabry Australia's mission and vision and meet quarterly by teleconference.

Fabry Australia undertakes many activities, projects and programs to further support its membership.

Some of which include;

  • The Fabry Australia website

  • The Fabry Australia Social Media page and Fabry Australia Group Page which is under 'Secret' setting respecting privacy of those individuals posting about medical and personal Fabry experiences. Social media enables us to interact and communicate with members in a way that traditional websites cannot. We use social media as a means of remaining transparent providing timely information to our members.

  • Fabry Australia Fabry Patient Meeting - see Events for upcoming meetings throughout Australia

  • Fabry Australia National Fabry Patient Conference - biannual 2 day conference

  • Fabry Australia Newsletter (E News)  - sign up via the website link or email Fabry Australia directly.

  • Liaising with Pharmaceutical Industry 

  • Fabry Australia Medical Advisory Committee 

  • Fabry disease Advocacy

  • Fabry Australia Wellness Retreat

  • Fabry disease invited speaker meetings

  • Morning coffee meetings with individuals that are newly diagnosed with Fabry disease 

  • Fabry disease research 

  • Fabry Australia 'FUNdraising' activities

  • Fabry Awareness Month - April