Mission
Uniting and supporting the Australian Fabry community.
Aims and Objectives
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Improve contacts, information and support among people affected by Fabry disease and families, within Australia.
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Bring about more public awareness of Fabry disease.
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Improve the medical services to Fabry patients in Australia.
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Promote and support research into Fabry disease.
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Share information on Fabry disease, ongoing management and care as well as available treatments /therapies, to Fabry patients, their supporting carers and related Fabry stakeholders.
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Build links with families, clinicians, researchers and support groups, to strengthen and support local knowledge about Fabry disease.
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Co-operate and collaborate with other Fabry related groups and individuals interested in rare diseases to promote common interests.
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Help raise money in order to support with achieving these aims.