Uniting and supporting the Australian Fabry community.


Aims and Objectives

  • Improve contacts, information and support among people affected by Fabry disease and families, within Australia.

  • Bring about more public awareness of Fabry disease.

  • Improve the medical services to Fabry patients in Australia.

  • Promote and support research into Fabry disease.

  • Share information on Fabry disease, ongoing management and care as well as available treatments /therapies, to Fabry patients, their supporting carers and related Fabry stakeholders.

  • Build links with families, clinicians, researchers and support groups, to strengthen and support local knowledge about Fabry disease.

  • Co-operate and collaborate with other Fabry related groups and individuals interested in rare diseases to promote common interests.

  • Help raise money in order to support with achieving these aims.