Mission

 

Uniting the Australian Fabry community, by working together to improve the lives of those affected by Fabry disease.

 

Aims and Objectives

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• Improve contacts, information and support among people affected by Fabry disease and families, within Australia.

• Bring about more public awareness of Fabry disease.

• Improve the medical services to Fabry patients in Australia.

• Promote and support research into Fabry disease.

• Share information on Fabry disease, ongoing management and care as well as available treatments /therapies, to Fabry patients, their supporting carers and related Fabry stakeholders.

• Build links with families, clinicians, researchers and support groups, to strengthen and support local knowledge about Fabry disease.

• Co-operate and collaborate with other Fabry related groups and individuals interested in rare diseases to promote common interests.

• Help raise money in order to support with achieving these aims.