Fabry Australia Membership
We invite you to join a community of individuals, families, scientists, healthcare professionals and industry partners who aim to improve the lives of people living and working with Fabry disease.
Membership is FREE and creates a number of distinct opportunities:
-
Receive news of research into medical and supportive care
-
Be informed about promising medical developments
-
Know that your voice is being heard
-
Help us to advocate for access to medical therapies, services and devices
-
Share your life experiences and benefit from others'
-
Work to improve physical and mental wellbeing of all
-
Support research into safe, effective and affordable therapies
Who is membership for?
Individuals, families and carers directly impacted by a positive diagnosis of Fabry Disease.
To join
Simply click the link below
Who is Fabry Australia Incorporated?
Fabry Australia is an independent non-government organisation developed and managed by the Australian Fabry community to support others within the community.
Our origins
Fabry Australia was formed in 1994 by a group of Fabry patients and their families around the kitchen table. It has grown from strength to strength with members from across Australia, New Zealand and other countries.