Fabry Australia Membership

We invite you to join a community of individuals, families, scientists, healthcare professionals and industry partners who aim to improve the lives of people living and working with Fabry disease.

 

Membership is FREE and creates a number of distinct opportunities:     

  • Receive news of research into medical and supportive care      

  • Be informed about promising medical developments      

  • Know that your voice is being heard      

  • Help us to advocate for access to medical therapies, services and devices     

  • Share your life experiences and benefit from others'       

  • Work to improve physical and mental wellbeing of all        

  • Support research into safe, effective and affordable therapies 

 

Who is membership for? 

Individuals, families and carers directly impacted by a positive diagnosis of Fabry Disease. 

 

To join

Simply click the link below

Or email: admin@fabry.com.au

 

Who is Fabry Australia Incorporated?

Fabry Australia is an independent non-government organisation developed and managed by the Australian Fabry community to support others within the community.

 

Our origins

Fabry Australia was formed in 1994 by a group of Fabry patients and their families around the kitchen table. It has grown from strength to strength with members from across Australia, New Zealand and other countries.​   

OUR MISSION IS 'UNITING AND SUPPORTING THE AUSTRALIAN FABRY COMMUNITY