Contact Your MP

Fabry Australia encourages you to develop a relationship with your local Federal MP and share with them your current experience of living with Fabry Disease.  Currently, Fabry Australia is asking the Federal Health Minister to improve access to Fabry Disease treatments (Enzyme Replacement Therapies) and ensure access to new therapies occur without delay. The criteria to receive Enzyme Replacement Therapy (ERT) has not been reviewed since 2004 when they were first listed on the Life Saving Drugs Program (LSDP). Fabry Australia would like to see the guidelines reviewed allowing paediatric patients the ability to access treatment with little delay in line with global practice.

How can you help?

To find your local MP, please click here.