Contact Your MP
 

Fabry Australia encourages you to develop a relationship with your local Federal MP and share with them your current experience of living with Fabry Disease.  Currently, Fabry Australia is asking the Federal Health Minister to improve access to Fabry Disease treatments (Enzyme Replacement Therapies) and ensure access to new therapies occur without delay. The criteria to receive Enzyme Replacement Therapy (ERT) has not been reviewed since 2004 when they were first listed on the Life Saving Drugs Program (LSDP). Fabry Australia would like to see the guidelines reviewed allowing paediatric patients the ability to access treatment with little delay in line with global practice.
 

How can you help?
 

• Send your MP a letter introducing yourself and explaining how you and your family live with a rare disease called Fabry Disease. Download this example to help guide you with drafting your letter.

• Phone his/her office and make an appointment to hand deliver the letter and speak with them further.

• Invite your MP to LIKE Fabry Australia's Facebook page.

• Invite your MP to Follow Fabry Australia on Twitter. 

• Invite your MP to subscribe to the Fabry Australia E Newsletter.

• Invite your MP to visit and subscribe to the Fabry Australia YouTube Channel.
   

To find your local MP, please click here.