Dec 5, 20211 minCaitlin's StorySanofi Genzyme provide a program for health professionals called the ‘Fabry Academy’ and incorporate patient stories. In this video...
Apr 14, 20212 minSonya's StoryMy Father was the first in our family to be diagnosis with Fabry disease. He was 21 when I was born, and I believe he had been diagnosed...
Apr 12, 20212 minMy Diagnosis Story - Kaye StephensKaye recently shared her story about being diagnosed with Fabry disease. What led to your Fabry disease diagnosis? I had thickening of my...
Apr 12, 20212 minInterview with DianneWe recently ask Dianne Wallyn a few questions about living with Fabry disease. Below is her story. Tell us about your diagnosis journey....
Nov 21, 20191 minMargaret's StoryMargaret Davie graciously shared her Fabry journey during the Fabry Australia 2019 National Patient Meeting. Share your Fabry Story with...
Nov 21, 20191 minMark's StoryDuring the Fabry Australia 2019 National Patient Meeting, Mark de Wolf proudly shared his Fabry journey with those who attended. Share...
Nov 20, 20191 minMonica's StoryMonica Hunter was diagnosed with Fabry Disease at a young age, this is her story as she presented at the Fabry Australia 2019 National...
Nov 20, 20191 minGavin's StoryDuring the Fabry Australia 2019 National Patient Meeting, Gavin Schmetzer gave us an insight into the carers life of someone with Fabry...
Nov 22, 20183 minSheridan Campbell shares her story on living with Fabry DiseaseFabry Australia’s Management Committee Chair; Sheridan Campbell shared her lived experience of Fabry Disease with Riverine Herald. WHEN...
Nov 22, 20181 minMandurah family turn to IVF to cut rare geneFabry Australia member from Western Australia, Tania also shared her story of what a diagnosis of Fabry Disease meant to family planning...
Feb 19, 20182 minSimon's StoryI started on my Fabry story, when at the age of 10 while suffering a high fever I was put into Hospital quarantine. Everyone including my...
Feb 19, 20183 minCarol's StoryPersonal Story ‘The Rare battle in New Zealand’ By Carol Carol lives with Fabry disease along with her children and other members of her...
Feb 19, 20185 minLiz Hunt's StoryFirstly, I would like to acknowledge the traditional owners of the land on which we are meeting. I pay my respects to their Elders, past...
Feb 12, 20181 minFabry Australia DirectorMy Name is Megan Fookes. I am happily married to a wonderful; supportive husband and have 2 very gorgeous children. My youngest child,...