I started on my Fabry story, when at the age of 10 while suffering a high fever I was put into Hospital quarantine. Everyone including my family had to put o...

Personal Story ‘The Rare battle in New Zealand’ By Carol Carol lives with Fabry disease along with her children and other members of her family. She gives a ...

Firstly, I would like to acknowledge the traditional owners of the land on which we are meeting. I pay my respects to their Elders, past and present, and to ...

My Name is Megan Fookes. I am happily married to a wonderful; supportive husband and have 2 very gorgeous children. My youngest child, Adam has Fabry disease...