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    Caitlin's Story
    • Dec 5, 2021
    • 1 min

    Caitlin's Story

    Sanofi Genzyme provide a program for health professionals called the ‘Fabry Academy’ and incorporate patient stories. In this video...
    73 views
    Sonya's Story
    • Apr 14, 2021
    • 2 min

    Sonya's Story

    My Father was the first in our family to be diagnosis with Fabry disease. He was 21 when I was born, and I believe he had been diagnosed...
    126 views
    My Diagnosis Story - Kaye Stephens
    • Apr 12, 2021
    • 2 min

    My Diagnosis Story - Kaye Stephens

    Kaye recently shared her story about being diagnosed with Fabry disease. What led to your Fabry disease diagnosis? I had thickening of my...
    205 views
    Interview with Dianne
    • Apr 12, 2021
    • 2 min

    Interview with Dianne

    We recently ask Dianne Wallyn a few questions about living with Fabry disease. Below is her story. Tell us about your diagnosis journey....
    107 views
    Margaret's Story
    • Nov 21, 2019
    • 1 min

    Margaret's Story

    Margaret Davie graciously shared her Fabry journey during the Fabry Australia 2019 National Patient Meeting. Share your Fabry Story with...
    61 views
    Mark's Story
    • Nov 21, 2019
    • 1 min

    Mark's Story

    During the Fabry Australia 2019 National Patient Meeting, Mark de Wolf proudly shared his Fabry journey with those who attended. Share...
    112 views
    Monica's Story
    • Nov 20, 2019
    • 1 min

    Monica's Story

    Monica Hunter was diagnosed with Fabry Disease at a young age, this is her story as she presented at the Fabry Australia 2019 National...
    54 views
    Gavin's Story
    • Nov 20, 2019
    • 1 min

    Gavin's Story

    During the Fabry Australia 2019 National Patient Meeting, Gavin Schmetzer gave us an insight into the carers life of someone with Fabry...
    70 views
    Sheridan Campbell shares her story on living with Fabry Disease
    • Nov 22, 2018
    • 3 min

    Sheridan Campbell shares her story on living with Fabry Disease

    Fabry Australia’s Management Committee Chair; Sheridan Campbell shared her lived experience of Fabry Disease with Riverine Herald. WHEN...
    85 views
    Mandurah family turn to IVF to cut rare gene
    • Nov 22, 2018
    • 1 min

    Mandurah family turn to IVF to cut rare gene

    Fabry Australia member from Western Australia, Tania also shared her story of what a diagnosis of Fabry Disease meant to family planning...
    38 views
    Simon's Story
    • Feb 19, 2018
    • 2 min

    Simon's Story

    I started on my Fabry story, when at the age of 10 while suffering a high fever I was put into Hospital quarantine. Everyone including my...
    92 views
    Carol's Story
    • Feb 19, 2018
    • 3 min

    Carol's Story

    Personal Story ‘The Rare battle in New Zealand’ By Carol Carol lives with Fabry disease along with her children and other members of her...
    96 views
    Liz Hunt's Story
    • Feb 19, 2018
    • 5 min

    Liz Hunt's Story

    Firstly, I would like to acknowledge the traditional owners of the land on which we are meeting. I pay my respects to their Elders, past...
    65 views
    Fabry Australia Director
    • Feb 12, 2018
    • 1 min

    Fabry Australia Director

    My Name is Megan Fookes. I am happily married to a wonderful; supportive husband and have 2 very gorgeous children. My youngest child,...
    37 views

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