Sanofi Genzyme provide a program for health professionals called the ‘Fabry Academy’ and incorporate patient stories. In this video...

My Father was the first in our family to be diagnosis with Fabry disease. He was 21 when I was born, and I believe he had been diagnosed...

Kaye recently shared her story about being diagnosed with Fabry disease. What led to your Fabry disease diagnosis? I had thickening of my...

We recently ask Dianne Wallyn a few questions about living with Fabry disease. Below is her story. Tell us about your diagnosis journey....

Margaret Davie graciously shared her Fabry journey during the Fabry Australia 2019 National Patient Meeting. Share your Fabry Story with...

During the Fabry Australia 2019 National Patient Meeting, Mark de Wolf proudly shared his Fabry journey with those who attended. Share...

Monica Hunter was diagnosed with Fabry Disease at a young age, this is her story as she presented at the Fabry Australia 2019 National...

During the Fabry Australia 2019 National Patient Meeting, Gavin Schmetzer gave us an insight into the carers life of someone with Fabry...

Fabry Australia’s Management Committee Chair; Sheridan Campbell shared her lived experience of Fabry Disease with Riverine Herald. WHEN...

Fabry Australia member from Western Australia, Tania also shared her story of what a diagnosis of Fabry Disease meant to family planning...

I started on my Fabry story, when at the age of 10 while suffering a high fever I was put into Hospital quarantine. Everyone including my...

Personal Story ‘The Rare battle in New Zealand’ By Carol Carol lives with Fabry disease along with her children and other members of her...

Firstly, I would like to acknowledge the traditional owners of the land on which we are meeting. I pay my respects to their Elders, past...

My Name is Megan Fookes. I am happily married to a wonderful; supportive husband and have 2 very gorgeous children. My youngest child,...