Jan 133 minPostponed - Fabry Wellness RetreatUpdate 14-January 2022 It is with a heavy heart, the Fabry Australia Committee again announce the Fabry Wellness Retreat will again be...
Dec 5, 20211 minCaitlin's StorySanofi Genzyme provide a program for health professionals called the ‘Fabry Academy’ and incorporate patient stories. In this video...
Nov 18, 20211 minWA Patient MeetingWe are pleased to announce the WA Patient Meeting has been scheduled for Friday 3-December 2021 at the Royal Perth Hospital, Cardiology...
Sep 13, 20212 minNDIS WebinarWe are excited to announce our NDIS webinar will be held on Wednesday 29-September at 7pm (AEST). Virginia Wiggins is the provider will...
Jul 30, 20211 minFabry Australia 2021 AGM This notice is to advise you of the upcoming 2021 Annual General Meeting of the members of Fabry Australia. Please note, this meeting is...
May 10, 20212 minFabry Wellness Retreat Sep 2021Come join us at the Fabry Australia 2021 Wellness Retreat in Caloundra, Queensland.
Apr 14, 20212 minSonya's StoryMy Father was the first in our family to be diagnosis with Fabry disease. He was 21 when I was born, and I believe he had been diagnosed...
Apr 12, 20212 minMy Diagnosis Story - Kaye StephensKaye recently shared her story about being diagnosed with Fabry disease. What led to your Fabry disease diagnosis? I had thickening of my...
Apr 12, 20212 minInterview with DianneWe recently ask Dianne Wallyn a few questions about living with Fabry disease. Below is her story. Tell us about your diagnosis journey....
Jul 30, 20201 minFabry Australia AGMFabry Australia extends an invitation to you to join the 2020 Fabry Australia Annual General Meeting via Zoom. Who: Fabry Australia...
Apr 30, 20201 minWA Fabry Patient Zoom MeetingFabry Australia invites the Western Australia Fabry Patients to connect and be updated on all things Fabry via a Zoom Webinar.
Apr 6, 20204 minCOVID-19 & Fabry Disease Webinar ReportCOVID-19 and Fabry Disease with the Fabry Disease Medical Advisory Committee Webinar Right now, we are all learning to adapt...
Mar 14, 20202 minFabry Disease & (COVID-19) Advice for Patients/ Parents /GuardiansIn response to the Fabry patients who have been in touch looking for advice relating to the global Coronavirus
Feb 26, 20201 minFabry Australia attends the 16th Annual WORLD SymposiumFabry Australia Director, Megan Fookes, recently attended the 16th Annual WORLD Symposium. To read Megan's report, please click here....
Feb 21, 20202 minClinical Trials in AustraliaThere are several clinical trials for Fabry disease happening in Australia and recruiting Fabry patients.
Nov 21, 20191 minMargaret's StoryMargaret Davie graciously shared her Fabry journey during the Fabry Australia 2019 National Patient Meeting. Share your Fabry Story with...
Nov 21, 20191 minMark's StoryDuring the Fabry Australia 2019 National Patient Meeting, Mark de Wolf proudly shared his Fabry journey with those who attended. Share...
Nov 20, 20191 minMonica's StoryMonica Hunter was diagnosed with Fabry Disease at a young age, this is her story as she presented at the Fabry Australia 2019 National...