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    Preventing the consequences:
    • Feb 15
    • 1 min

    Preventing the consequences:

    Preventing the consequences.
    39 views
    Postponed - Fabry Wellness Retreat
    • Jan 13
    • 3 min

    Postponed - Fabry Wellness Retreat

    Update 14-January 2022 It is with a heavy heart, the Fabry Australia Committee again announce the Fabry Wellness Retreat will again be...
    56 views
    Caitlin's Story
    • Dec 5, 2021
    • 1 min

    Caitlin's Story

    Sanofi Genzyme provide a program for health professionals called the ‘Fabry Academy’ and incorporate patient stories. In this video...
    73 views
    WA Patient Meeting
    • Nov 18, 2021
    • 1 min

    WA Patient Meeting

    We are pleased to announce the WA Patient Meeting has been scheduled for Friday 3-December 2021 at the Royal Perth Hospital, Cardiology...
    18 views
    NDIS Webinar
    • Sep 13, 2021
    • 2 min

    NDIS Webinar

    We are excited to announce our NDIS webinar will be held on Wednesday 29-September at 7pm (AEST). Virginia Wiggins is the provider will...
    59 views
    Fabry Australia 2021 AGM
    • Jul 30, 2021
    • 1 min

    Fabry Australia 2021 AGM

    This notice is to advise you of the upcoming 2021 Annual General Meeting of the members of Fabry Australia. Please note, this meeting is...
    46 views
    Fabry Wellness Retreat Sep 2021
    • May 10, 2021
    • 2 min

    Fabry Wellness Retreat Sep 2021

    Come join us at the Fabry Australia 2021 Wellness Retreat in Caloundra, Queensland.
    271 views
    Sonya's Story
    • Apr 14, 2021
    • 2 min

    Sonya's Story

    My Father was the first in our family to be diagnosis with Fabry disease. He was 21 when I was born, and I believe he had been diagnosed...
    126 views
    My Diagnosis Story - Kaye Stephens
    • Apr 12, 2021
    • 2 min

    My Diagnosis Story - Kaye Stephens

    Kaye recently shared her story about being diagnosed with Fabry disease. What led to your Fabry disease diagnosis? I had thickening of my...
    205 views
    Interview with Dianne
    • Apr 12, 2021
    • 2 min

    Interview with Dianne

    We recently ask Dianne Wallyn a few questions about living with Fabry disease. Below is her story. Tell us about your diagnosis journey....
    107 views
    Fabry Australia AGM
    • Jul 30, 2020
    • 1 min

    Fabry Australia AGM

    Fabry Australia extends an invitation to you to join the 2020 Fabry Australia Annual General Meeting via Zoom. Who: Fabry Australia...
    3 views
    WA Fabry Patient Zoom Meeting
    • Apr 30, 2020
    • 1 min

    WA Fabry Patient Zoom Meeting

    Fabry Australia invites the Western Australia Fabry Patients to connect and be updated on all things Fabry via a Zoom Webinar.
    49 views
    COVID-19 & Fabry Disease Webinar Report
    • Apr 6, 2020
    • 4 min

    COVID-19 & Fabry Disease Webinar Report

    COVID-19 and Fabry Disease with the Fabry Disease Medical Advisory Committee Webinar Right now, we are all learning to adapt...
    188 views
    Fabry Disease & (COVID-19) Advice for Patients/ Parents /Guardians
    • Mar 14, 2020
    • 2 min

    Fabry Disease & (COVID-19) Advice for Patients/ Parents /Guardians

    In response to the Fabry patients who have been in touch looking for advice relating to the global Coronavirus
    544 views
    Fabry Australia attends the 16th Annual WORLD Symposium
    • Feb 26, 2020
    • 1 min

    Fabry Australia attends the 16th Annual WORLD Symposium

    Fabry Australia Director, Megan Fookes, recently attended the 16th Annual WORLD Symposium. To read Megan's report, please click here....
    65 views
    Clinical Trials in Australia
    • Feb 21, 2020
    • 2 min

    Clinical Trials in Australia

    There are several clinical trials for Fabry disease happening in Australia and recruiting Fabry patients.
    82 views
    e-News November 2019
    • Nov 27, 2019
    • 1 min

    e-News November 2019

    To read the e-News Press Here
    37 views
    Margaret's Story
    • Nov 21, 2019
    • 1 min

    Margaret's Story

    Margaret Davie graciously shared her Fabry journey during the Fabry Australia 2019 National Patient Meeting. Share your Fabry Story with...
    61 views
    Mark's Story
    • Nov 21, 2019
    • 1 min

    Mark's Story

    During the Fabry Australia 2019 National Patient Meeting, Mark de Wolf proudly shared his Fabry journey with those who attended. Share...
    112 views
    Monica's Story
    • Nov 20, 2019
    • 1 min

    Monica's Story

    Monica Hunter was diagnosed with Fabry Disease at a young age, this is her story as she presented at the Fabry Australia 2019 National...
    54 views
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