Fabry Australia is committed to uniting the Australian Fabry community, by working together to improve the lives of those affected by Fabry disease.
Strategy
Fabry Australia incorporated in 1994 and is registered as a not-for-profit charity patient organisation to raise awareness and educate others about Fabry disease. Fabry Australia is a Patient Association made up of members and families diagnosed with Fabry disease. Fabry Australia's Strategic Plan is reviewed regularly by the Management Committee.
Annual General Meeting
In keeping with Association Incorporation rules, Fabry Australia holds an Annual General Meeting with its members. Please read Fabry Australia's 2018-2019 Annual Report
Policies
Fabry Australia has written several policies for you to review or download;
Fabry Australia's Working with the Pharmaceutical Industry Policy
Fabry Australia's Non-Endorsement Policy
Fabry Australia's Guide to Using Facebook for Patients and Families Living with Fabry Disease
Further details are located in the Fabry Australia Understanding Fabry Disease Fact Sheet Booklet
Fabry Australia Registration Details
Fabry Australia is registered as a charity with the Australian Charities and Not-for-profits Commission
ABN 70 053 079 595 and is an Incorporated Association of Victoria Registration Number A0029817E
Funding Fabry Australia
Fabry Australia is a non-Government patient organisation that operates on a membership model. Its income is made up of member subscriptions, fundraising funds, educational grants and donors. All income is used for its projects to further support the Australian Fabry community. Fabry Australia has Deductible gift recipient status (DGR) and all donations $2 and over are tax deductible.
Fabry Australia receives grants from companies including pharmaceutical companies. The following companies have made contribution to Fabry Australia educational projects; Avrobio, Amicus Therapeutics, Sanofi Genzyme and Shire Australia.
Fabry Australia has written a policy 'Working with pharmaceutical Industry' which outlines how Fabry Australia maintains independence and integrity as a patient organisation with the patient as the main focus of all that it does as outlined in its strategic plan.