upcoming events

FSGA National Fabry Patient Meeting October 22, 2011

FSGA is looking forward to gathering with its membership at the upcoming National Fabry Patient Meeting on Saturday October 22nd 2011.

See Program for details

We are very excited to have a full day’s program with 3 key speakers being; Dr Kathy Nicholls of the Fabry Clinic in Victoria, Dr Drago Bratkovic of the Adelaide Fabry Clinic, Annalisa Cannizzaro of Carers Victoria as well as FSGA presenting some of this year’s exciting projects! This one day conference includes the welcome morning tea, lunch (sponsored by Amicus Therapeutics), afternoon tea and 2 course dinner (excluding beverages).

 

FSGA kindly invites its members (at no cost except for beverages) to a sit down 2 course dinner at the Rydges Hotel at North Melbourne (situated across the road from the conference facility) at 6.30pm.

Could you please RSVP your attendance for both the 1 day conference and dinner by September 22 so we can confirm catering needs with both the restaurant and the caterers of the conference?

Please RSVP to:

FSGA Correspondence Secretary; Rachael Collins OR FSGA Secretary: Marie Sansotta Allen

 

FSGA is looking forward to seeing as many members as possible at this important annual event.

27-Nov-2011

Rare Gems Inaugural Newsletter

Rare Gems Newsletter

23-Nov-2011

Fabry Shortage Update November 2011

Genzyme update on the supply of Fabrazyme

This section of the website contains published articles from the following sources:

  • Newspapers 
  • Magazines
  • Research Papers
  • Videos
  • Television

There are some great you tube sites suitable for educating young Fabry patients.

Watch the recent Fabry disease episode of House on FOX TV...

Fabry Australia gratefully acknowledges the generous support of the following organisations that are helping to make a difference to people and families affected by Fabry disease.
 
   
               
Fabry Support Group Australia         ABN 70 053 079 595        Reg Charity A0029817E