upcoming events

FSGA Annual General Meeting

The FSGA Annual General Meeting (AGM) is to be held in Brisbane in October 2010
More details coming soon!

World Rare Disease Day Feb 28th 2010

FSGA are endorsing this very important day to raise awareness about rare diseases.
How can you help support this?
See www.rarediseaseday.org for further information

 

FIN (Fabry International Network)

FIN are holding their conference in Feb 2010 in Amsterdam
FSGA are represented on the FIN board and are attending this conference
For further information about FIN see www.fabryintnetwork.com

 

 

MPS 2010 & Related Diseases International Symposium

June 23rd-27th 2010 in Adelaide
“Translating Research into Clinical Reality”
Further information go to www.mps2010.com.au

19-Jul-2010

Dear Fabry Community Letter from Genzyme

A Dear Fabry Community Letter giving an update on the supply of Fabrazyme

06-Jun-2010

Invitation to Dr S Waldek

FSGA is very fortunate to have international speaker Dr Stephen Waldek present to Australian Fabry patients in 5 states.

This section of the website contains published articles from the following sources:

  • Newspapers 
  • Magazines
  • Research Papers
  • Videos
  • Television

There are some great you tube sites suitable for educating young Fabry patients.

Watch the recent Fabry disease episode of House on FOX TV...

Fabry Australia gratefully acknowledges the generous support of the following organisations that are helping to make a difference to people and families affected by Fabry disease.
 
   
               
Fabry Support Group Australia         ABN 70 053 079 595        Reg Charity A0029817E