upcoming events
FSGA Annual General Meeting
The FSGA Annual General Meeting (AGM) is to be held in Brisbane in October 2010
More details coming soon!
World Rare Disease Day Feb 28th 2010
FSGA are endorsing this very important day to raise awareness about rare diseases.
How can you help support this?
See www.rarediseaseday.org for further information
FIN (Fabry International Network)
FIN are holding their conference in Feb 2010 in Amsterdam
FSGA are represented on the FIN board and are attending this conference
For further information about FIN see www.fabryintnetwork.com
MPS 2010 & Related Diseases International Symposium
June 23rd-27th 2010 in Adelaide
“Translating Research into Clinical Reality”
Further information go to www.mps2010.com.au
News
19-Jul-2010
Dear Fabry Community Letter from Genzyme
A Dear Fabry Community Letter giving an update on the supply of Fabrazyme
06-Jun-2010
Invitation to Dr S Waldek
FSGA is very fortunate to have international speaker Dr Stephen Waldek present to Australian Fabry patients in 5 states.
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