Fabry disease has received relatively little public attention over the years, which is a huge problem!  Many doctors and specialists have not heard of Fabry Disease and many patients go undiagnosed for many years before realising they have it.

Raising awareness can help provide valuable information and support to healthcare professionals, patients, and their families.

FSGA Poster

FSGA had developed their own FSGA Poster which you can download and share with others to help raise awareness about Fabry Disease and the Fabry Support Group of Australia.
FSGA Poster

Educational Brochures

You can request educational brochures about Fabry disease to be mailed to you.
FSGA are in the process of reprinting these.  Watch this space!
Get Brochures

Downloads: Educational Materials

These educational materials may help you share your story with friends, family members, doctors, teachers and employers.
These particular brochures are produced by Genzyme.
Understanding Fabry Disease & Medical Family Tree (PDF)
Guide for Women with Fabry Disease (PDF)
Fabry Disease Symptom Checklist (PDF

Expression of Hope

This program was initiated by Genzyme Corporation to help raise awareness of lysosomal storage disorders.  You can help raise awareness about Fabry disease by sending an e-card to a family member or friend. Each card features artwork created by someone with Fabry disease or a caregiver.
People with Fabry disease and their caregivers, along with other lysosomal storage disorders, have submitted artwork which shares their feelings of hope and explores the realities, perceptions, and experiences of living with an LSD.
Send an E-Card