Fabry disease has received relatively little public attention over the years, which is a huge problem!  Many doctors and specialists have not heard of Fabry Disease and many patients go undiagnosed for many years before realising they have it.

Raising awareness can help provide valuable information and support to healthcare professionals, patients, and their families.

FSGA Merchandise

FSGA now has a 'shop'!  Merchandise in the form of running t-shirts, caps, tote bags and wrist bands have been made with the FSGA logo.  The running shirts also have the slogan "work up a sweat for those who can't: on the back along with our website address - so while you are running you are raising awareness for Fabry disease.  All funds raised through the sale of merchandise or the subsequent fund raising will be allocated towards future Fabry research.  Get yours now, see our brochure and order form for details

FSGA Poster

FSGA had developed their own FSGA Poster which you can download and share with others to help raise awareness about Fabry Disease and the Fabry Support Group of Australia.
FSGA Poster

Educational Brochures

You can request educational brochures about Fabry disease to be mailed to you.
FSGA are in the process of reprinting these.  Watch this space!
Get Brochures

Expression of Hope

This program was initiated by Genzyme Corporation to help raise awareness of lysosomal storage disorders.  You can help raise awareness about Fabry disease by sending an e-card to a family member or friend. Each card features artwork created by someone with Fabry disease or a caregiver.
People with Fabry disease and their caregivers, along with other lysosomal storage disorders, have submitted artwork which shares their feelings of hope and explores the realities, perceptions, and experiences of living with an LSD.
Send an E-Card