Fabry Support Group Australia publishes a quarterly Newsletter for FSGA Members. The newsletter contains many articles, news items, stories submitted from Fabry members, information for parents of children with Fabry Disease, Upcoming clinical Fabry trials, information from Treatment Centres, Australian Federal Health Departments, and upcoming events such as interstate and overseas Speakers about Fabry disease, Conferences and so much more!
Fabry Australia was formed in 1994 and the newsletter has been in circulation since then!
To view any current or past FSGA Newsletters simply click on the issue year and month below.
2009 Summer March
2009 Winter May
2009 Spring August
2009 Christmas November
2008 October
2008 July
2008 March
2007 August
2007 January
2006 July
2006 February
2005 May
2005 February
2004 May
2003 October
2003 August
2002 December
2002 March
2001 December
2001 September
2001 April
2000 November
1999 April
1998 February
1997 September
1997 June
1997 March
1996 September
1995 March
1995 (No.4)
1994 November
1994 July
By law, Fabry Australia writes an Annual General Report for each financial year, reporting the year’s events and highlights. To read any of these Reports simply click on the year required.
2009
2008
2007
2006
2005
2004
2003
2002
2001
2000
1999
1998
1997
1996
1995
08-Dec-2009
Genzyme Australasia have issued a patient letter for all Australian Fabry patients.
07-Dec-2009
FSGA are represented on Australia’s World Rare Disease Day