publications

Fabry Support Group Australia publishes a quarterly Newsletter for FSGA Members.  The newsletter contains many articles, news items, stories submitted from Fabry members, information for parents of children with Fabry Disease, Upcoming clinical Fabry trials, information from Treatment Centres, Australian Federal Health Departments, and upcoming events such as interstate and overseas Speakers about Fabry disease, Conferences and so much more!

Fabry Australia was formed in 1994 and the newsletter has been in circulation since then!

 To view any current or past FSGA Newsletters simply click on the issue year and month below.

Newsletters 

Current Issues

2009 Summer March
2009 Winter May
2009 Spring August
2009 Christmas November 

Past Issues

2008  October
2008  July
2008  March
2007  August
2007  January
2006  July
2006  February
2005  May
2005  February
2004  May
2003  October
2003  August
2002  December
2002  March
2001  December
2001  September
2001  April
2000  November
1999 April
1998  February
1997  September
1997  June
1997  March
1996  September
1995  March
1995  (No.4)
1994  November
1994  July

Annual General Reports

By law, Fabry Australia writes an Annual General Report for each financial year, reporting the year’s events and highlights.  To read any of these Reports simply click on the year required.
2009
2008
2007
2006
2005
2004
2003
2002
2001
2000
1999
1998
1997
1996
1995

08-Dec-2009

Fabrazyme Short Supply for Fabry Patients in 2010

Genzyme Australasia have issued a patient letter for all Australian Fabry patients.

07-Dec-2009

‘World Rare Disease Day’ Feb 28th 2010

FSGA are represented on Australia’s World Rare Disease Day

This section of the website contains published articles from the following sources:

  • Newspapers 
  • Magazines
  • Research Papers
  • Videos
  • Television

There are some great you tube sites suitable for educating young Fabry patients.

Watch the recent Fabry disease episode of House on FOX TV...

Fabry Australia gratefully acknowledges the generous support of the following organisations that are helping to make a difference to people and families affected by Fabry disease.
 
   
               
Fabry Support Group Australia         ABN 70 053 079 595        Reg Charity A0029817E