Dialog Box

Loading...

Fabry Australia Medical Advisory Committee

Fabry Australia's Medical Advisory Committee's purpose is;

1. To promote and document ‘best practice’ of Fabry Disease Clinical Care. An impartial, sustainable model that practises co-ordinated, ongoing clinical care, including access to diagnostic testing, opportunities for ongoing research and access to safe, current treatments for Fabry Disease and a transitional program from paediatrics to adult care.

2. To review the guidelines to access current Fabry Disease Treatments in Australia.

3. To provide a forum for physicians and other professionals for collaboration, exploration and development of services for Fabry patients, their families and caregivers.

4. To support Fabry Australia’s Fabry Patient Conference / meetings updating the Australian Fabry community of current research and clinical studies.

 See Fabry Australia Medical Advisory Committee's Terms of Reference