Fabry Australia Medical Advisory Committee
Fabry Australia's Medical Advisory Committee's purpose is;
To promote and document
‘best practice’ of Fabry Disease Clinical Care. An impartial, sustainable model
that practises co-ordinated, ongoing clinical care, including access to
diagnostic testing, opportunities for ongoing research and access to safe,
current treatments for Fabry Disease and a transitional program from
paediatrics to adult care.
To review the guidelines to
access current Fabry Disease Treatments in Australia.
To provide a forum for
physicians and other professionals for collaboration, exploration and
development of services for Fabry patients, their families and caregivers.
To support Fabry
Australia’s Fabry Patient Conference / meetings updating the Australian Fabry
community of current research and clinical studies.
See Fabry Australia Medical Advisory Committee's Terms of Reference