Dialog Box


Fabry Australia National Patient Meeting

‘Exploring the Fabry Future’
Saturday 9th September 2017
Novotel Melbourne, St Kilda
16 The Esplanade St Kilda, Victoria, 3182 (03) 9525 5522

Fabry Australia is pleased to invite the Fabry patient community to this year’s Fabry Australia National Fabry Patient Meeting – ‘Exploring the Fabry Future’ being held on 9th September 2017 at the Novotel Hotel in St Kilda Victoria.

This year’s conference shaping up to be a fabulous program. We are fortunate to have excellent speakers presenting on a range of topics including; the latest clinical Fabry Disease research, findings from the Australian Experience of living with Fabry Disease, Management of Fabry Disease in the clinical setting, Fabry Disease and Genetics / inheritance, Fabry patient support programs, Carers Support Programs / NDIS, Fabry Disease Testing Programs, the isolation of living with Fabry Disease in New Zealand and some Fabry Disease patient testimonies. Fabry Australia has invited a facilitator to help with a workshop on Fundraising – putting the ‘Fun’ back into fundraising. We would love your ideas here and in keeping with our Association’s Incorporation’s responsibilities we will be hosting the Annual General Meeting (AGM).

The conference program includes all materials, access to speakers, morning and afternoon tea, hot & cold lunch and dinner at the Hotel restaurant. To view the conference program PRESS HERE.


Professor Ingrid Winship

Kate Outhred 

Dr Andrew Mallett

Natalie Fraser

Mary Lalor 

Kathy Nicholls 

Megan Fookes OAM 

Vicki Petrou 

Dr Andrew Talbot 


To register for the National Fabry Patient Meeting Saturday 9th September 2017 Press Here. Please note, registrations close 18th August 2017.  When registering please indicate any dietary and/or mobility requirements. The cost to register is FREE to Fabry Australia Members and $150 for non-members. Registration includes; Conference entrance, conference materials/papers/presentations, morning & afternoon tea, cold/hot lunch and dinner in the Novotel Hotel restaurant.

Travel Scholarships

Fabry Australia has a travel scholarship program for the patient conference. If you are interested in applying for a scholarship (subject to availability) please complete Fabry Australia Travel Scholarship Form and email to secretary@fabry.com.au Please note that conditions apply.

We look forward to catching up with the Australian Fabry Community very soon!