About Fabry Australia
Fabry Australia is a not-for-profit Patient Organisation founded and operated by people with a direct connection to a rare inherited diease called Fabry Disease.
Fabry disease is often difficult to diagnose due to its rarity and its many different symptoms and can be mistaken for other known conditions.
Whether you are a person diagnosed with Fabry Disease, a family member of a person with Fabry Disease, or a health care professional treating a Fabry affected patient, Fabry Australia is a source of information, support and assistance on issues related to Fabry Disease especially relevant to the Australian region.
Fabry Australia works in collaboration with stakeholders such as; Fabry Clinics and Doctors, Pharmaceutical Companies and the Australian Federal Government Departments in relation to issues surrounding access to appropriate health care, services and treatments of Fabry Disease in Australia. Fabry Australia is also a member of another important organisation called FIN (Fabry International Network) a global, independent network of Fabry patient associations whose purpose is to collaborate, communicate and promote best practice to support those affected by Fabry Disease. Further information about FIN go to: www.fabryintnetwork.com
The Name 'Fabry Australia'
The registered name is Fabry Australia Inc. (Incorporated Association) or abbreviated, FA. Formerly known as Fabry’s Support Group Inc. and Fabry Support Group Australia Inc.
Registered Charity Status
Fabry Australia is a registered Charity (A0029817E) and has endorsement as a deductible gift recipient (DGR) for donations to Fabry Australia $2 and over. All receipted donations are tax deductible. See Donations for more information.