How to Help
Fabry disease is a rare disease and is largely unheard of amongst the general population. However many medical professions are becoming familiar with its symptoms and families who have tested for the disease are receiving earlier diagnosis. With your ongoing generous support we are able to continue providing care and support to those in need of our services.
As for any Charitable oetworks and international contacts, improve information flows, and produce newsletters. Fabry Australia is a non profit support group organisation and relies on charitable donations. FA provides much needed information, education and support to people with Fabry disease, their families and carers. Our services are free of charge and we are here to assist and help anyone affected by Fabry disease. Your ongoing supported is very much appreciated. rganisation, there is the task of raising money to contribute to specific research initiatives, build local support n
All contributions over $2 are tax deductible in Australia and much appreciated.
FA encourages you to help raise further awareness and funds for Fabry research. To see more, go to Donations.
Individuals with Fabry disease have disease management and treatment options today because of a relatively few researchers, physicians, patients, corporate sponsors and others who were courageous enough to engage in rare disease research and clinical trials. We are forever grateful for their many years of dedicated service and sacrifices.
With kidney dialysis and transplants, enzyme replacement therapy, and other disease management options many individuals with Fabry disease can live healthier and longer lives. But significant challenges remain to increase understanding of Fabry disease and its effects, and to improve treatment and management options beyond today’s successes.
You can donate immediately using FA’s online donation option.