our committee

 

The Fabry Support Group of Australia is an Incorporated Association and received its certificate of Incorporation on 22nd July 1994.

In accordance with the Associations Incorporations Act (1981), Fabry Australia, complies to a number of important statutory obligations.

The current members of the Fabry Australia Executive Committee are as follows:

 President     Megan Fookes
 Vice President  Lea Chant
 Secretary                Marie Sansotta- Allen
 Treasurer  Ross Clark
 Newsletter Editor  Rachael
 Webmaster   Alan Camilleri
 Public Officer  Margaret Williams
 Executive Members  Claire
 Julie Fitzgerald
 Anna Percy

To view the biographies of each of the FSGA Committee Members you can go to the secure section of the website personal stories.

19-Jul-2010

Dear Fabry Community Letter from Genzyme

A Dear Fabry Community Letter giving an update on the supply of Fabrazyme

06-Jun-2010

Invitation to Dr S Waldek

FSGA is very fortunate to have international speaker Dr Stephen Waldek present to Australian Fabry patients in 5 states.

This section of the website contains published articles from the following sources:

  • Newspapers 
  • Magazines
  • Research Papers
  • Videos
  • Television

There are some great you tube sites suitable for educating young Fabry patients.

Watch the recent Fabry disease episode of House on FOX TV...

Fabry Australia gratefully acknowledges the generous support of the following organisations that are helping to make a difference to people and families affected by Fabry disease.
 
   
               
Fabry Support Group Australia         ABN 70 053 079 595        Reg Charity A0029817E