our committee

 

The Fabry Support Group of Australia is an Incorporated Association and received its certificate of Incorporation on 22nd July 1994.

In accordance with the Associations Incorporations Act (1981), Fabry Australia, complies to a number of important statutory obligations.

Photo taken at National Fabry Patient Meeting October 2009. From left: Megan Fookes, Lea Chant, Ross Clark, Claire Campbell, Rachael Collins, Margaret Williams and Marie Sansotta-Allen.

The current members of the Fabry Australia Executive Committee are as follows:

 President     Megan Fookes
 Vice President  Lea Chant
 Secretary                Marie Sansotta- Allen
 Treasurer  Ross Clark
 Newsletter Editor  Rachael Collins
 Webmaster   Alan Camilleri
 Public Officer  Margaret Williams
 Committee Member  Claire Campbell

To view the biographies of each of the FSGA Committee Members you can go to the secure section of the website personal stories.

08-Dec-2009

Fabrazyme Short Supply for Fabry Patients in 2010

Genzyme Australasia have issued a patient letter for all Australian Fabry patients.

07-Dec-2009

‘World Rare Disease Day’ Feb 28th 2010

FSGA are represented on Australia’s World Rare Disease Day

This section of the website contains published articles from the following sources:

  • Newspapers 
  • Magazines
  • Research Papers
  • Videos
  • Television

There are some great you tube sites suitable for educating young Fabry patients.

Watch the recent Fabry disease episode of House on FOX TV...

Fabry Australia gratefully acknowledges the generous support of the following organisations that are helping to make a difference to people and families affected by Fabry disease.
 
   
               
Fabry Support Group Australia         ABN 70 053 079 595        Reg Charity A0029817E