Fabry Patient Conference Speaker Announcement
17 Jul 2017 at 12:00AM
Category: Fabry Australia News
Announcing Fabry Australian Managing Director, Megan Fookes, OAM as a speaker for the upcoming 2017 Fabry Patient Conference.
Megan Fookes, OAM, a
former educator and mother of two children (one who is diagnosed with Fabry
disease as well as herself), is a voluntary Managing Director of Fabry
Australia. She has been involved with Fabry Australia since 1999. She also served
as founding Executive Director of a National Alliance for Rare Diseases in
Australia; Rare Voices Australia for five years and sat on their Board of
Directors. She continues to sit on the Council of Rare Diseases
association with Rare Diseases stems from a very personal connection. Her late
father; David Davie waited 48 years to receive a diagnosis of Fabry disease. Her
parents who were very keen to learn more co-founded the Fabry Patient
Organisation and established the first Fabry Clinic in Melbourne 23 years ago.
Megan Fookes, was awarded the Medal of the Order (OAM) on Australia Day in 2016 and has dedicated the award to her late father and to all adults, children and families who are doing their very best living with rare diseases.
To register for the National Fabry Patient Meeting Saturday 9th September 2017 Press Here. Please note, registrations close 18th August 2017. When registering please indicate any dietary and/or mobility requirements.
The cost to register is FREE to Fabry Australia Members and $150 for non-members.
Registration includes; Conference entrance, conference materials/papers/presentations, morning & afternoon tea, cold/hot lunch and dinner in the Novotel Hotel restaurant.