news

27-Nov-2011

Rare News October 2011

Rare Gems Newsletter

23-Nov-2011

Fabry Shortage Update November 2011

Genzyme update on the supply of Fabrazyme

08-Sep-2011

FSGA National Fabry Meeting OCT 2011

FSGA is looking forward to gathering with its membership at the upcoming National Fabry Patient Meeting on Saturday October 22nd 2011.

12-Aug-2011

FSGA Fabrazyme Update August 2011

Genzyme update on the supply of Fabrazyme

03-Jun-2011

FSGA Fabrazyme Update June 2011

Genzyme update on the supply of Fabrazyme

01-Jun-2011

IMPORTANT LETTER FROM FDAC CHAIR – FABRAZYME ERT

Ongoing issues with the supply of Fabrazyme.

 

 

27-Nov-2011

Rare Gems Inaugural Newsletter

Rare Gems Newsletter

23-Nov-2011

Fabry Shortage Update November 2011

Genzyme update on the supply of Fabrazyme

This section of the website contains published articles from the following sources:

  • Newspapers 
  • Magazines
  • Research Papers
  • Videos
  • Television

There are some great you tube sites suitable for educating young Fabry patients.

Watch the recent Fabry disease episode of House on FOX TV...

Fabry Australia gratefully acknowledges the generous support of the following organisations that are helping to make a difference to people and families affected by Fabry disease.
 
   
               
Fabry Support Group Australia         ABN 70 053 079 595        Reg Charity A0029817E