news

08-Dec-2009

Fabrazyme Short Supply for Fabry Patients in 2010

Genzyme Australasia have issued a patient letter for all Australian Fabry patients.

07-Dec-2009

‘World Rare Disease Day’ Feb 28th 2010

FSGA are represented on Australia’s World Rare Disease Day

01-Dec-2009

FSGA are invited to attend MPS 2010 & Related Diseases

June 23rd-27th 2010 in Adelaide “Translating Research into Clinical Reality”

01-Dec-2009

FSGA is a member of FIN (Fabry International Network)

FIN Conference 4th- 5th Feb 2010 FSGA will be represented at this FIN event and report will be following in next year’s FSGA Newsletter.

01-Dec-2009

FSGA Annual General Report 2008-2009

Read our Annual Report for 2008-2009

01-Dec-2009

FSGA Nov 2009 Newsletter

Our latest newsletter

08-Dec-2009

Fabrazyme Short Supply for Fabry Patients in 2010

Genzyme Australasia have issued a patient letter for all Australian Fabry patients.

07-Dec-2009

‘World Rare Disease Day’ Feb 28th 2010

FSGA are represented on Australia’s World Rare Disease Day

This section of the website contains published articles from the following sources:

  • Newspapers 
  • Magazines
  • Research Papers
  • Videos
  • Television

There are some great you tube sites suitable for educating young Fabry patients.

Watch the recent Fabry disease episode of House on FOX TV...

Fabry Australia gratefully acknowledges the generous support of the following organisations that are helping to make a difference to people and families affected by Fabry disease.
 
   
               
Fabry Support Group Australia         ABN 70 053 079 595        Reg Charity A0029817E