media

This section of the website contains published articles from the following sources:

  • Newspapers 
  • Magazines
  • Research Papers
  • Videos
  • Television

 

 

Newspapers

Merle Zeally of Ballarat Victoria, a wonderful member of Fabry Australia, lost her husband and two daughters to Fabry Disease.  Merle has made such a wonderful contribution to the group over the years by making lovely craft, such as; dressed teddy bears, covered coat hangers and photo albums to raise money to support FSGA.  Read more about Merle and her story of Fabry which were both published in 1997 by her local newspaper the ‘Ballarat Courier’.


Magazine Articles – Fabry Disease

Australian Women’s Weekly 1994 – written by Margaret Davie ‘My Story’ – ‘My Husband is So Special’ ( See below)

Research Papers

This section is COMING SOON!

Videos 

Treating FABRY DISEASE 
1 min 33 sec - 28 Oct 2009
This health video looks into the different treatments for FABRY DISEASE which is the lack of or faulty enzyme needed to metabolize lipids, fat-like ...
veoh.com - Related videos

Genetics 101 - Leslie Lysosome and Alec Baldwin tell it ...
2 min 10 sec - 8 Oct 2009
more. ... lysosome lysosomal "genetic DISEASE" FABRY "niemann pick" "hunter DISEASE" "tay sachs" "batten DISEASE" "mental retardation ...
youtube.com - Related videos

Lyso What?? How can you know what it is if you can' ... 
44 sec - 9 Oct 2009
Lysosome lysosomal "tay sachs" gaucher FABRY "niemann pick" "genetic DISEASE" "childrens DISEASE" "rare DISEASE" "tristen cortes ...
youtube.com - Related videos

Welcome to Hide & Seek 
1 min 22 sec - 14 Oct 2009
help. ... "Stephanie Lyn Cortes" "Tristen Cortes" lysosome Lysosomal "niemann pick" FABRY mps hunter "tay sachs" "brain DISEASE" "rare ...
youtube.com - Related videos

Television

Watch the recent Fabry disease episode of House on FOX TV at

http://www.fox.com/fod/play.php?sh=house.

 

08-Dec-2009

Fabrazyme Short Supply for Fabry Patients in 2010

Genzyme Australasia have issued a patient letter for all Australian Fabry patients.

07-Dec-2009

‘World Rare Disease Day’ Feb 28th 2010

FSGA are represented on Australia’s World Rare Disease Day

This section of the website contains published articles from the following sources:

  • Newspapers 
  • Magazines
  • Research Papers
  • Videos
  • Television

There are some great you tube sites suitable for educating young Fabry patients.

Watch the recent Fabry disease episode of House on FOX TV...

Fabry Australia gratefully acknowledges the generous support of the following organisations that are helping to make a difference to people and families affected by Fabry disease.
 
   
               
Fabry Support Group Australia         ABN 70 053 079 595        Reg Charity A0029817E