Links to Fabry sites

The Fabry Related Links section contains links to additional Fabry and related websites which may be of interest or help to those seeking a support group or information in a particular country or language. 

The Fabry Australia website and support group is not limited to those in a particular geographic region and wishes to facilitate access to the most appropriate and desired resources.

Pharmaceutical Companies

Australian Sites

Fabry Australia is affiliated with many genetic support groups across Australia. 

Genetic Alliance

AGSA (The Association of Genetic Support of Australasia Inc)

GSNV (Genetic Support Network of Victoria)

The Collective of Self Help Groups (COSHG)

Self Help Queensland

Genetic Support Council of WA Inc (GSCWA)

 



Smile Foundation
Australian National Organisation for Rare Diseases

Jeans for Genes

Lysosomal Diseases – Fabry Disease

Fabry Australia is one of many Lysosomal storage disorders and rare disorders. FSGA are affiliated with our brother and sister groups both here in Australia and abroad.

Australian MPS Society

Australian Pompe’s Association 

National Gaucher Foundation

Lysosomal Diseases New Zealand –LDNZ

 National Organization for Rare Disorders (NORD)

 


International Genetic Alliance

Fabry Sites for Children

Children with Fabry need to learn more about how Fabry affects them.  These sites address how Lysosomal disorders affect them.

Taryn’s World

Gaucher Kids

Hide and Seek Foundation