Fabry disease is a rare inherited, lysosomal storage disorder caused by a defective gene in the body.

The Fabry Support Group of Australia is a not-for-profit community organisation whose primary aim is to share information about Fabry Disease and available treatment, amongst the Australian Fabry Community.

27-Nov-2011

Rare Gems Inaugural Newsletter

Rare Gems Newsletter

23-Nov-2011

Fabry Shortage Update November 2011

Genzyme update on the supply of Fabrazyme

This section of the website contains published articles from the following sources:

  • Newspapers 
  • Magazines
  • Research Papers
  • Videos
  • Television

There are some great you tube sites suitable for educating young Fabry patients.

Watch the recent Fabry disease episode of House on FOX TV...

Fabry Australia gratefully acknowledges the generous support of the following organisations that are helping to make a difference to people and families affected by Fabry disease.
 
   
               

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Fabry Support Group Australia         ABN 70 053 079 595        Reg Charity A0029817E