fabry surveys and questionnaires

To assist the FSGA executive committee in their planning for 2012, please complete this Survey November 2011

If you did not attend the patient meeting in Melbourne please skip the first question. This suvey will be open until mid January 2012.  Your FSGA executive committee thank you for your feedback.

27-Nov-2011

Rare Gems Inaugural Newsletter

Rare Gems Newsletter

23-Nov-2011

Fabry Shortage Update November 2011

Genzyme update on the supply of Fabrazyme

This section of the website contains published articles from the following sources:

  • Newspapers 
  • Magazines
  • Research Papers
  • Videos
  • Television

There are some great you tube sites suitable for educating young Fabry patients.

Watch the recent Fabry disease episode of House on FOX TV...

Fabry Australia gratefully acknowledges the generous support of the following organisations that are helping to make a difference to people and families affected by Fabry disease.
 
   
               
Fabry Support Group Australia         ABN 70 053 079 595        Reg Charity A0029817E