donations

As for any Charitable organisation, there is the task of raising money to contribute to specific research initiatives, build local support networks and international contacts, improve information flows, and produce newsletters. The Fabry Support Group of Australia is a non profit support group organisation and relies on charitable donations. Fabry Australia provides much needed information, education and support to people with Fabry disease, their families and carers. Our services are free of charge and we help anyone affected by Fabry disease.

Fabry disease is a rare disease and is largely unheard of amongst the general population. However many medical professions are becoming familiar with its symptoms and families who have tested for the disease are receiving earlier diagnosis. With your ongoing generous support we are able to continue providing care and support to those in need of our services.

All contributions over $2 are tax deductible in Australia.

 

To make a donation now:

Online Donation - donate immediately using this online donation option, or

Donation Form - download, print and post the donation form

08-Dec-2009

Fabrazyme Short Supply for Fabry Patients in 2010

Genzyme Australasia have issued a patient letter for all Australian Fabry patients.

07-Dec-2009

‘World Rare Disease Day’ Feb 28th 2010

FSGA are represented on Australia’s World Rare Disease Day

This section of the website contains published articles from the following sources:

  • Newspapers 
  • Magazines
  • Research Papers
  • Videos
  • Television

There are some great you tube sites suitable for educating young Fabry patients.

Watch the recent Fabry disease episode of House on FOX TV...

Fabry Australia gratefully acknowledges the generous support of the following organisations that are helping to make a difference to people and families affected by Fabry disease.
 
   
               
Fabry Support Group Australia         ABN 70 053 079 595        Reg Charity A0029817E