Fabry Support Group Australia is a not-for-profit community organisation formed by patients, relatives and friends of those affected by a rare genetic disorder known as Fabry Disease.

Fabry disease can be difficult to diagnose because it is rare and has many different symptoms. It is often mistaken for other conditions. The longer someone has Fabry disease, the more damage is likely to occur in the kidneys, heart and other organs. The earlier Fabry disease is diagnosed the better the chance of preventing other health problems.

Whether you are a person diagnosed with Fabry Disease, a family member of a person with Fabry Disease, or a health care professional treating a Fabry affected patient, Fabry Support Group Australia is your source of information, support and assistance on issues related to Fabry Disease.

Fabry Support Group Australia also acts on behalf of the Australian Fabry Community in discussions with Treatment Centres and Doctors, Pharmaceutical Companies and Australian Federal Government Departments in relation to issues surrounding treatments of Fabry Disease in Australia.  FSGA is also a member of another important organisation called FIN (Fabry International Network) a global, independent network of Fabry patient associations whose purpse is to collaborate, communicate and promote best practice to support those affected by Fabry Disease.

Our Name

Our registered name is Fabry Support Group Australia Inc. (incorporated) or abbreviated FSGA.  Formerly known as Fabry’s Support Group Inc.  We also have a shortened alternative name: Fabry Australia.

Our Status

Fabry Australia is a registered Charity (A0029817E) and has endorsement as a deductible gift recipient for donations to Fabry Australia $2 and over.  These donations are tax deductible upon presentation of a receipt.  See Donations for more information.