Rare News October 2011
27-Nov-2011
Rare News October 2011
Welcome to the first edition of Rare Gems. We hope you enjoy it. You will also find information about Awakening Australia to Rare Diseases, the inaugural national symposium on rare diseases held in Western Australian in April 2011. The theme was Awakening Australia to Rare Diseases, Global perspectives on establishing a coordinated approach to a national plan. Our president, Megan Fookes was a guest speaker. Her talk on 'Patient Empowerment and the role of the Support Group', titled 'It started with Dad' was inspirational.
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News
27-Nov-2011
Rare Gems Inaugural Newsletter
Rare Gems Newsletter
23-Nov-2011
Fabry Shortage Update November 2011
Genzyme update on the supply of Fabrazyme
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