Invitation to Dr S Waldek

06-Jun-2010

Invitation to Dr S Waldek

FSGA is very fortunate to have international speaker Dr Stephen Waldek present to Australian Fabry patients in 5 states.

Dr Waldek is one of the Medical Advisors for FIN (Fabry International Network) and has kindly put time aside to meet us.

For further information, click on the following link:

 Invitation to Dr S Waldek

 

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27-Nov-2011

Rare Gems Inaugural Newsletter

Rare Gems Newsletter

23-Nov-2011

Fabry Shortage Update November 2011

Genzyme update on the supply of Fabrazyme

This section of the website contains published articles from the following sources:

  • Newspapers 
  • Magazines
  • Research Papers
  • Videos
  • Television

There are some great you tube sites suitable for educating young Fabry patients.

Watch the recent Fabry disease episode of House on FOX TV...

Fabry Australia gratefully acknowledges the generous support of the following organisations that are helping to make a difference to people and families affected by Fabry disease.
 
   
               
Fabry Support Group Australia         ABN 70 053 079 595        Reg Charity A0029817E