05-May-2010
Fabrazyme Short Supply Update
If you recieving a reduced dose of Fabrazyme, please click on to the following two links:
Letter from FSGA President Megan Fookes
Letter from the CEO of Genzyme
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01-Sep-2010
FSGA is currently organising a Fabry Patient Conference and Annual General Meeting. Thank you to those members who filled out and posted or emailed the ‘Expression of Interest’ form last month. As the feedback was somewhat limited, FSGA have organised the FSGA AGM and Conference on half a day only.
28-Aug-2010
General communication to our local Fabry community and its stakeholders regarding the supply of Replagal for the remainder of 2010.