FSGA Special Committee Meeting April 2010

05-Apr-2010

FSGA Special Committee Meeting April 2010

Due to the increasing needs and workload of the FSGA Committee and expansion of members to New Zealand, the FSGA Committee would like to increase the committee from the existing 6
members to 9 members which would include: President, Vice President, Secretary, Treasurer
and Public Officer, with the remaining committee members titled “Executive Member”. Executive
Members can then be allocated specific roles such as Newsletter Editor, Webmaster or
representative for a particular region (e.g. New Zealand Representative).
A letter further explaining this change along with changes to membership will be sent to all FSGA
members via post. Any objections or comments can be made and sent to FSGA Secretary Marie
at mc4allen@bigpond.com or post to PO Box 269 Willoughby NSW 2068.
The FSGA Constitution stipulates FSGA must hold a Extraordinary Meeting for these changes to
be approved by the Committee. The meeting will be held by teleconference on the 27th April 2010.

 

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There are some great you tube sites suitable for educating young Fabry patients.

Watch the recent Fabry disease episode of House on FOX TV...

Fabry Australia gratefully acknowledges the generous support of the following organisations that are helping to make a difference to people and families affected by Fabry disease.
 
   
               
Fabry Support Group Australia         ABN 70 053 079 595        Reg Charity A0029817E