01-Dec-2009
FSGA are invited to attend MPS 2010 & Related Diseases
June 23rd-27th 2010 in Adelaide
“Translating Research into Clinical Reality”
01-Dec-2009
FSGA is a member of FIN (Fabry International Network)
FIN Conference 4th- 5th Feb 2010
FSGA will be represented at this FIN event and report will be following in next year’s FSGA Newsletter.
01-Dec-2009
Fabry Support Group Australia Patient Meeting and AGM 2009
FSGA will be holding their AGM in Melbourne on Sunday 18th October.
01-Sep-2010
FSGA is currently organising a Fabry Patient Conference and Annual General Meeting. Thank you to those members who filled out and posted or emailed the ‘Expression of Interest’ form last month. As the feedback was somewhat limited, FSGA have organised the FSGA AGM and Conference on half a day only.
28-Aug-2010
General communication to our local Fabry community and its stakeholders regarding the supply of Replagal for the remainder of 2010.