news

01-Dec-2009

FSGA are invited to attend MPS 2010 & Related Diseases

June 23rd-27th 2010 in Adelaide
“Translating Research into Clinical Reality”

01-Dec-2009

FSGA is a member of FIN (Fabry International Network)

FIN Conference 4th- 5th Feb 2010
FSGA will be represented at this FIN event and report will be following in next year’s FSGA Newsletter.

01-Dec-2009

Fabry Support Group Australia Patient Meeting and AGM 2009

FSGA will be holding their AGM in Melbourne on Sunday 18th October.

01-Sep-2010

FSGA Conference & AGM 30th October 2010 Sydney

FSGA is currently organising a Fabry Patient Conference and Annual General Meeting. Thank you to those members who filled out and posted or emailed the ‘Expression of Interest’ form last month. As the feedback was somewhat limited, FSGA have organised the FSGA AGM and Conference on half a day only.

28-Aug-2010

Important information re: Replagal

General communication to our local Fabry community and its stakeholders regarding the supply of Replagal for the remainder of 2010.

This section of the website contains published articles from the following sources:

  • Newspapers 
  • Magazines
  • Research Papers
  • Videos
  • Television

There are some great you tube sites suitable for educating young Fabry patients.

Watch the recent Fabry disease episode of House on FOX TV...

Fabry Australia gratefully acknowledges the generous support of the following organisations that are helping to make a difference to people and families affected by Fabry disease.
 
   
               
Fabry Support Group Australia         ABN 70 053 079 595        Reg Charity A0029817E