05-Apr-2010
FSGA Special Committee Meeting April 2010
FSGA is inviting its members to review the recommended changes to its constitution
10-Mar-2010
Fabrazyme Short Supply for Fabry Patients in 2010
Genzyme Australasia have issued a patient letter for all Australian Fabry patients.
28-Feb-2010
FSGA is a member of FIN (Fabry International Network)
FSGA invites its members to read the Conference Report
08-Dec-2009
Fabrazyme Short Supply for Fabry Patients in 2010
Genzyme Australasia have issued a patient letter for all Australian Fabry patients.
07-Dec-2009
‘World Rare Disease Day’ Feb 28th 2010
FSGA are represented on Australia’s World Rare Disease Day
01-Sep-2010
FSGA is currently organising a Fabry Patient Conference and Annual General Meeting. Thank you to those members who filled out and posted or emailed the ‘Expression of Interest’ form last month. As the feedback was somewhat limited, FSGA have organised the FSGA AGM and Conference on half a day only.
28-Aug-2010
General communication to our local Fabry community and its stakeholders regarding the supply of Replagal for the remainder of 2010.