news

05-May-2010

Fabrazyme Short Supply Update

Letters from FSGA President Megan Fookes and Genzyme

05-Apr-2010

FSGA Special Committee Meeting April 2010

FSGA is inviting its members to review the recommended changes to its constitution

10-Mar-2010

Fabrazyme Short Supply for Fabry Patients in 2010

Genzyme Australasia have issued a patient letter for all Australian Fabry patients.

28-Feb-2010

FSGA is a member of FIN (Fabry International Network)

FSGA invites its members to read the Conference Report

08-Dec-2009

Fabrazyme Short Supply for Fabry Patients in 2010

Genzyme Australasia have issued a patient letter for all Australian Fabry patients.

07-Dec-2009

‘World Rare Disease Day’ Feb 28th 2010

FSGA are represented on Australia’s World Rare Disease Day

01-Sep-2010

FSGA Conference & AGM 30th October 2010 Sydney

FSGA is currently organising a Fabry Patient Conference and Annual General Meeting. Thank you to those members who filled out and posted or emailed the ‘Expression of Interest’ form last month. As the feedback was somewhat limited, FSGA have organised the FSGA AGM and Conference on half a day only.

28-Aug-2010

Important information re: Replagal

General communication to our local Fabry community and its stakeholders regarding the supply of Replagal for the remainder of 2010.

This section of the website contains published articles from the following sources:

  • Newspapers 
  • Magazines
  • Research Papers
  • Videos
  • Television

There are some great you tube sites suitable for educating young Fabry patients.

Watch the recent Fabry disease episode of House on FOX TV...

Fabry Australia gratefully acknowledges the generous support of the following organisations that are helping to make a difference to people and families affected by Fabry disease.
 
   
               
Fabry Support Group Australia         ABN 70 053 079 595        Reg Charity A0029817E